April is Adenomyosis Awareness Month

April is adenomyosis awareness month. Until I was diagnosed with this condition I had no idea that it even existed, yet according to the gynaecologist who diagnosed me, approximately ten percent of people with uteruses of childbearing age have signs of adenomyosis on ultrasound. Many cases are asymptomatic, so often people will go through life without it ever being picked up.

What is adenomyosis?

Adenomyosis (ad-uh-no-my-O-sis) occurs when the tissue that normally lines the uterus (endometrial tissue) grows into the muscular wall of the uterus. The displaced tissue continues to act normally — thickening, breaking down and bleeding — during each menstrual cycle. An enlarged uterus and painful, heavy periods can result. My doctor described it as the evil cousin of endometriosis, where the uterine lining grows outside of the uterus. Continue reading

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COVID-19 Lock Down

I haven’t posted anything about this particular Coronavirus. I’m not an expert. I’m not a clinician. It’s not my field. But also, I haven’t been able to collect the words together.

However, I was reminded today that we are living through history here. We”re living through what future generations will study. Even as soon as Eden’s generation, they will likely study this at school. They’ll talk about everything that went right and wrong, they’ll use it to explain germ theory and the story of COVID-19 will likely follow experiments involving glitter and hand washing.

Until today, we’ve been told to practise social distancing – standing six feet away from others that are not in your household, being inside as much as possible and only going out when necessary. This weekend was an alarming demonstration on the stupidity of human beings. Government advice stated that we could go out and about for a walk or exercise. The great British Public took this as “your holidays have started early! Feel free to flock in high numbers to beaches, parks and public spaces!” It. Was. Horrendous.

Aiden, Eden and I did not take part in the ridiculousness. Partially because we’re not dimwits, but also because both Aiden and I are on the list of vulnerable people. Aiden has been stood down from work and I am working from home – or at least I will be once they find me a laptop and things to do. I want nothing more than to be able to support my colleagues through this, but the underground in London is running a limited service, which means trains are busier and I wouldn’t be able to social distance effectively. I’m asthmatic, which means I am at higher risk of having complications or dying if I do contract the virus.

Since over a week ago, we have been advised that if anyone in our house shows symptoms of the virus, we should quarantine the whole household for fourteen days. This has lead to a LOT of people being off work. The idea of fourteen days is that the person with the illness can get over it and the others in the house can contract it and get over it. If you live alone, the advice is to quarantine for seven days. There are at risk groups, with the most at risk being told to fully isolate for up to twelve weeks. Those who have certain conditions are being told to be especially stringent in practising social distancing. This is the group that Aiden and I fall into.

Anyway, people have been crying out for lockdown for at least a week now, and tonight our Prime Minister finally pulled the plug.

There are very few places to actually go if you’re not squabbling over pasta in a supermarket. Restaurants are closed, as are pubs. On Friday night, pubs were ordered to close and people rushed out to get their “last orders” in. Some pubs even put on a “happy hour” for the occasion. For a few days, food places were operating take away only but that isn’t happening now. Our local McDonald’s closes tonight and last time I checked there was still a queue of cars around the block going in for a “last hurrah”. Starbucks closed last week. All gyms are closed, as well as libraries, soft play centres, leisure centres and places of worship. After today’s announcement, playgrounds will be closed too. Theatres closed last week, which was a particularly low moment for me.

What I’m hoping, is that this means people will stay home. That’s my hope. But, as those on my local Facebook group are keen to point out, we don’t have enough police to fully enforce this. Although we don’t have a huge number of them, police have been given powers to enforce these new rules.

On the plus side, people are doing some awesome things to help. My former NHS colleagues have been swamped with thanks and gifts to hospitals and such, which is amazing. But on the flip side of that, some NHS workers are being threatened with eviction by landlords who are scared of their property becoming infected. Eden’s theatre school have put out some of their show dances and songs online so that they can continue to learn. Audible have made kids books free to listen to. Education apps have become free and schools are sending home things for kids to do. The community spirit around this has been fantastic, even though we cannot physically be close to one another. Last week, JoJo Siwa did online live dance classes, which Eden absolutely LOVED.

At the time of writing, the UK is reporting 83945 tests, 6650 of which were positive and 335 of these positive tests resulted in deaths. We are not testing as much as other countries are. Leading experts are saying this will be our downfall. We have no idea how many cases there actually are in the UK.

That’s really all I have for this. We’re scared, yes. Not like full on terrified, but certainly anxious and certainly not sure of this world ahead of us. None of us have lived through anything like this. Some grandparents lived through the Blitz, but this isn’t like that. Honestly, I never thought we’d have another pandemic like this. It’s terrifying and it really has highlighted the stupidity and pigheadedness of the human race.

Until next time, stay safe and I’ll update again soon.

Eden practising her show dances
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Matilda, Eden & Me.

When I was a little girl, I was obsessed with Matilda. The book, the movie, all of it. On watching the movie a few weeks ago I realised that even now, I still know most of the script!

As a child, I was very much like Matilda. A bookworm, who was bullied at school and wanted desperately to fit in. I wanted desperately to be recognised for something or other and I’ve always had a very strong sense of what is right or wrong. Something that has carried me well in the last few years, in fact. Continue reading

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Theatre, Eden & Me.

Since being a child, I have loved the theatre. We didn’t really go when I was growing up, but I remember absolutely loving the idea. I’ve always loved musicals in particular, having spent much of my childhood learning every single word to all of the songs in The Sound of Music, Carousel, Oklahoma and many more. I studied drama at GCSE and A Level and actually moved to London with the intention of auditioning for drama school.

That didn’t pan out for many reasons, but since being down here (twelve years now!) I have seen a lot of theatre. I’ve worked at a few theatres. It’s part of London for me, with the West End being one of my favourite places in my city. Aiden and I met for the first time at a theatre and a few years back we had a successful theatre blog and were reviewing shows three or four times a week. You can see why that wasn’t sustainable with us having two full time jobs as well! Continue reading

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Aiden’s One Year Transition Update

Well I am fashionably late with my one year update!!!

I have been living in my affirmed gender now for sixteen months. SIXTEEN MONTHS!!! But it feels as if Aiden has been a part of me for my entire life. Some people have told me they feel like their “old self” dies and they mourn that death to a certain extent but I dont feel like Amy died. I feel like Amy was always Aiden and has just evolved from basic form, getting ready for that final Stage evolution. (Pokemon reference for the geeks among us) Continue reading

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Being a Siwanator, Eden & Me

“Just be kind”.

Something we are telling Eden a lot at the moment is to just be kind. She told us the other day that there’s a kid at her childminder who always wants to play Power Rangers with her, and she doesn’t like him so she says “GO AWAY!” I don’t know this kid at all. I’ve heard his name a few times, but this is the first time Eden has ever spoken like this about one of her peers. It’s the first time, really, that she’s expressed dislike towards another child.

I had to think a little on this one, because as much as I believe she doesn’t have to play with everyone who wants to play with her, there’s no excuse for rudeness or for excluding other kids unfairly. I was excluded a lot at school and bullied horrifically, so I know how it feels to be that kid who just wants to join in. Admittedly, we’re talking about three and four year olds here, rather than me as a ten year old, but I think my point stands. Continue reading

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Eden’s ENT Appointment

Those who have been following our Facebook page or Instagram will know about Eden’s regular bouts of tonsillitis. She had her first diagnosed case just before her second birthday. It led to the majority of our Florida holiday being spent in the hotel room as she was just so poorly, but the antibiotics had her right as rain in no time at all.

Since then she’s had it every couple of months. Touch wood, we are in a phase at the moment when it hasn’t appeared for some time. Her last case was in October 2019, which was number eight or nine since she was two. Just before we went on holiday last year, I booked her into the GP to see if we could get antibiotics to take with us to save her the USA urgent care visit. We left that appointment with not only an antibiotic prescription, but a referral to Ear, Nose and Throat Clinic as well. Continue reading

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